COVID-19 Resources for People with Disability

The DRDC has put together a brief list of helpul links to information about the new coronavirus (COVID-19), which is specifically geared towards people with disability and their caregivers and families. We also wanted to share a guide for First Responders, which is a general resource for helping people with specific disabilities as well as […]Read More »

DRDC Publications Update

As of the beginning of 2020, the DRDC projects had produced 54 published manuscripts, two books, and two educational products. You can find the list of DRDC publications here with links to the educational products, too. Dozens of additional DRDC-supported papers are in review, revision or preparation; and they will be added to the list […]Read More »

David W. Smith Workshop on Malformations and Morphogenesis

Annually, the DRDC provides support to the David W. Smith Workshop, which brings together clinicians and scientists to advance understanding of normal and abnormal morphogenesis. You can find more information on the meeting website here: https://www.dwsmith.org/. In 2020, the meeting will be held in Skamania Resort in Stevenson, Washington, and the list of speakers can […]Read More »

Systematic Review and Meta-analysis of Pain Interventions for People with Longstanding Disability

Pain, chronic pain, and pain management are of considerable interest in health care, however, little information is readily available about pain prevalence or management for people with longstanding disability. The overall goal for this project is to identify and report on literature related to pain and pain interventions for people with longstanding disability. As is […]Read More »

Assessing Impact of cCMV Infection on Development and Language in Infants Identified by a Universal Screening Program

Lifelong disabilities are caused by congenital cytomegalovirus (cCMV) infection; thus, there is a need to develop data-driven, rational newborn screening and intervention policies. The practice of targeted screening for cCMV – based on signs and symptoms of disease (included a failed newborn hearing screen) at birth – has been advocated by many groups. However, many […]Read More »

Impact of Early Hearing Detection and Intervention (EHDI) on the Educational Costs and Placements of Hearing Impaired Children

Currently, there are no studies with longitudinal data of placement and outcomes of children before and after the development of EHDI systems. The broad long term goal of this research project is to investigate the cost benefit for children with educationally significant hearing loss as a result of universal newborn hearing screening/early hearing detection and […]Read More »

Two new DRDC publications are available

The DRDC continues to explore medication usage in people with disabilities on several fronts. We have two recent manuscripts that can be found here: https://www.disabilityresearchcenter.com/research/publications/ One of the papers considered medication adherence in people with IDD and hypertension, and the other reviewed opioid prescription patterns in people with lifelong disability and immune conditions.Read More »

RFAs Posted for 2019 – Applications due March 4

The DRDC announces two (2) new research opportunities for the 2019 cycle.  These will be awarded from the University of South Carolina as subcontracts from its prime award for the DRDC, which is funded by the CDC’s National Center on Birth Defects and Developmental Disabilities (NCBDDD). All applications are due by 8PM Eastern time on […]Read More »

Utilization of Hospital Services for Opioid Users with Disabilities, using Population-based nationally representative data

Suzanne McDermott, PhD, University of South Carolina (Funded 2018) The overall goal for this project is to describe the opioid prescription filling experience for people with a range of disabilities, and to characterize their use of inpatient hospital and Emergency Department (ED) services during a two-year period. Publicly available National Health Interview Study (NHIS) data will be linked […]Read More »

Accelerated Timeline for EHDI Benchmarks

Jareen Meinzen-Derr, PhD, MPH, Cincinnati Children’s Hospital Medical Center (Funded 2018) The objective of this study is to investigate the effectiveness of different EHDI benchmarks for improving both short term (language) and long term (early academic) outcomes in children who are deaf/hard of hearing (D/HH) served through the state of Ohio’s EHDI program. This project […]Read More »