Scientific Publication Repository Developed by AAHD

The repository, found here, is a partial list of articles that have been authored or co-authored by CDC staff from the National Center on Birth Defects and Developmental Disabilities (NCBDDD), since 2010, and which has been categorized by year. Please also visit the NCBDDD website to view additional research articles, scientific publications, data and statistics, and […]Read More »

RFAs Posted for 2016 – Applications due March 1

The DRDC announces new research opportunities with the National Center on Birth Defects and Developmental Disabilities (NCBDDD) of the Centers for Disease Control (CDC) for 2016. NOTE: All applications are due on March 1, 2016. Application instructions are here and the topics with links are listed below. RFA-R16-01 EHDI Parents (Pilot) RFA-R16-02 Using EHDI to Assess […]Read More »

Work Begins on New Projects – September 30, 2015

The DRDC is funding 8 new and 7 continuing external projects through its Cooperative Agreement with the CDC’s National Center on Birth Defects and Developmental Disabilities. A complete list of external projects with links to project summaries can be found here.Read More »

Project to Learn About Youth – Mental Health II (Re-PLAY)

Kate Flory, PhD, University of South Carolina (Funded 2015-2017) Internalizing, externalizing, and tic disorders among children and adolescents increase the risk for many negative outcomes. Research is needed to better understand the epidemiology of mental health disorders among youth to inform best practices for identification, prevention, and treatment. The proposed project aims to extend the […]Read More »

Periconceptual Surveillance for Prevention of Anemia and Birth Defects in India

Julia Finkelstein, ScD, Cornell University (Funded 2015-2016) Neural tube closure defects (NTDs) are among the most common and severe adverse pregnancy outcomes in the United States and globally. Women of reproductive age are a high-risk population for anemia and micronutrient deficiencies, and there is increasing evidence of the role of periconceptional vitamin B12 and folate […]Read More »

Parent Action and Doctor Interaction Regarding Child Development Pre/Post-LTSAE

Anne Gadomski, MD, Bassett Healthcare Network (Funded 2015-2017) The purpose of this project is to answer the question: Does exposure to “Learn the Signs. Act Early.” (LTSAE) influence parents’ actual conversations about their young child’s development with their child’s health care provider? The LTSAE developmental milestone checklists and other parent educational material direct parents to […]Read More »

Observation & Pretesting Study: Adaptation of Amazing Me for 2-Year-Olds/Parents

Rebecca Ledsky, MBS, Family Health International (Funded 2015-2016) This goal of this project is to conduct formative/audience research to test a draft of a new book about and for 2-year-old children.  The book  that promotes developmental monitoring by parents while reading to their child, in order to improve early identification of developmental delays and disabilities.  […]Read More »

EHDI Quality Across the Continuum of Care

Terese Finitzo, PhD, OZ Systems (Funded 2015-2016) This project will address EHDI quality across the continuum of care in a retrospective sample of 1,000,000 newborns from three EHDI jurisdictions (TX, MD, ND). Its goal is to improve the frequency and quality of newborn hearing screening (NHS) and follow-up data that is reported, and to distinguish […]Read More »

Assessing Impact of Early Intervention Outcomes to Document EHDI Impact in Wisconsin

Anne B. Harris, PhD, University of Wisconsin (Funded 2015-2017) Approximately one to three out of every 1,000 children in the United States are born deaf or hard of hearing. Over  the past 20 years, research has consistently shown that children who have been identified earlier and enrolled in early intervention have demonstrated better expressive and […]Read More »

Assessing Impact of Early Identification and Intervention on Permanent Hearing Loss

Christine Yoshinaga-Itano, PhD, University of Colorado-Boulder (Funded 2015-2017) This project will analyze over 5000 assessments collected on over 2000 children with permanent hearing loss, before and after the establishment of universal newborn hearing screening. The majority of files have data on: age of identification of the hearing loss, age of intervention start, age of amplification, […]Read More »